Get Involved
Receiving the diagnosis of PI4KA-related disorder can feel overwhelming. Our Facebook support page will give you the opportunity to connect to other families with similar experiences. You can also get in touch with us directly via email for further information.
Join Our Community
You can make a difference! Join the PI4KA Patient Register to stay informed and contribute to research geared towards understanding and treating PI4KA-related disorder.
Get in touch by email: pi4ka.community@gmail.com
The PI4KA-related Disorder Support Group launching on Facebook soon.
Please check back soon.